2018 Community Engagement Fellowships
Exploring Parent Perceptions of Implementing an Early Intervention for their Toddlers with Autism
Jessica Amsbary: Applied Developmental Sciences and Special Education
Faculty mentor: Harriet Able
Community partner: Lauren Turner-Brown, Ph.D., TEACCH
This project will obtain parent perspectives of implementing a community-based early intervention designed for toddlers with autism spectrum disorder (ASD) to ensure that parents perceive the intervention as family-friendly and usable. Parents will participate in interviews focused on perceived challenges and successes in their abilities to implement the intervention as part of their daily routines and activities. Information obtained will be coded and analyzed to determine themes relating to (a) intervention components that parents perceive as leading to successes or challenges, (b) coaching processes that parents perceive as leading to successes or challenges, and (c) contexts that parents perceive as enabling or not enabling them to implement the intervention throughout their daily routines and activities. It is hoped that findings will reveal ways in which early interventions may be more easily implemented by parents and families of young children with ASD.
Creating Abundant Futures: A Photovoice Study on Chinese Transgender Women’s Economic Context
Willa Dong: Health Behavior
Faculty mentor: Kathryn Muessig
Community partner: Shenyang Consultation Centre of AIDS Aid and Health Service
Economic exclusion arising from high levels of societal stigma and discrimination is hypothesized to constrain transgender women’s life choices and increase risk for outcomes such as HIV (Poteat et al., 2015). Despite high levels of stigma documented against transgender women in China (see Asia Catalyst, 2015 and Yang et al., 2015), little is known about this context or transgender women’s resilience strategies for dealing with economic exclusion. This photovoice project aims to 1) describe this context and the impact on Chinese transgender women’s health to generate action to address these issues, 2) contribute to building community capacity for research and action, and 3) contribute to the scientific evidence base to lay the groundwork for continued work on transgender health in China.
Identity, Citizenship and Access to Opportunities for Young Women in Hyderabad, India
Pallavi Gupta: Geography
Faculty mentor: Sara Smith
Community partner: Shaheen Women’s Resource and Welfare Association
This project will examine how identities and access to opportunities are closely interlinked among marginalized communities living in Hyderabad. I wish to understand how the ideas of citizenship and marginalization play out in urban spaces. By interviewing young women 19-35 years old and by working closely with community-based organizations like Shaheen Women’s Resource and Welfare Association, I aim to interrogate the interface between identity and access to opportunity. While studies on marginalized communities in India focus on discrimination, the question of identity and its relationship to young women’s everyday experiences remains to be explored. My research focuses on the everyday experiences of young women from marginalized communities. A deep chasm exists between the vision laid out in the Constitution for an inclusive, egalitarian state and the reality on the ground, characterized by acute and brazen forms of discrimination experienced by marginalized communities like Dalits and minority communities like Muslims. I will work with Shaheen to develop research questions on how identity and everyday practices define citizenship for the marginalized.
Understanding Perinatal Health Experiences Among American Indian Women in Robeson County, North Carolina
Katherine Lemasters – Maternal and Child Health
Faculty mentor: Sarah Bledsoe and Alexandra Lightfoot
Community partner: Dr. Ronny Bell, North Carolina American Indian Health Board
This project aims to understand and strengthen the perinatal health and well-being of American Indians in the Lumbee tribal community in Robeson County, North Carolina (hereafter referred to as ‘the community’). Building on our formative work, we will address three aims. First, we will continue building a community advisory board (CAB) to support and guide this project. Second, we will build our understanding of how the community experiences the perinatal period and what their perinatal health concerns are. To do this, we will identify community participants (i.e., mothers, grandmothers) with the guidance of the CAB and will use photovoice as our participatory methodology. Third, we will collaboratively develop action steps to address the community’s identified perinatal health needs. We will host a community forum via a talking circle where our research team of participants, the CAB, and university-based investigators will display the photographs and discuss the photovoice project findings. Ideas generated during the forum will be used to collaboratively formulate action steps for an intervention to achieve perinatal health equity.
Muslim Histories of New York: A Video Archive Project in Harlem
Katherine Merriman: Religious Studies and Islamic and Middle Eastern Studies
Faculty mentor: Juliane Hammer
Community Partner: Zaheer Ali, Brooklyn Historical Society
New York City is a major hub of global Islamic history, and Harlem is particularly representative of this rich heritage through stories of multiracial struggle, artistic production and religious growth among several diverse Muslim communities. I seek to expand the reach and aims of my public scholarship project to create a video archive. In conversation with Muslim community partners, and with guidance from the Oral Historian at the Brooklyn Historical Society, I will produce eight video interviews with diverse Muslims in the neighborhood that will be made public on an online archive and at a panel event. The videos will be an educational source for city residents and outsiders to learn more about Islam in New York, and will document the contributions and valuable perspectives of Muslim New Yorkers. The videos will benefit Harlemite Muslims by archiving their communal religious history that is constantly under threat due to out migration, gentrification or being lost from memory.
Key Formative Work for Integration of Depression Management in HIV and Substance Use Care in Vietnam
Xuan Binh Minh Nguyen: Health Behavior
Faculty mentor: Vivian Go
Community partner: Hanoi Center of Preventive Medicine, Hanoi, Vietnam
HIV prevalence among people who inject drugs (PWID) is above 30 percent in Vietnam, and there is an urgent need to increase the reach and effectiveness of HIV treatment programs in this population. PWID also have high rates of common mental disorders (CMD), including depression, anxiety and post-traumatic stress disorder. Treatment for these conditions substantially improves PWID’s ability to manage both their addiction and HIV. Effective integration of resource-appropriate, scalable CMD care into existing HIV and methadone maintenance treatment (MMT) programs will be critical to enhance the engagement and ensure the long-term health of PWID with HIV in Vietnam. Our long-term goal is to integrate and scale up effective CMD treatment models to improve mental health, substance use and HIV outcomes for PWID with HIV in Vietnam. The objective of this pilot is to conduct formative research that will lay the groundwork for a competitive NIH R34 proposal to pilot-test the integration of a task-shifting CMD intervention into existing HIV/MMT care in Vietnam.
Square One: A Novel, Multidisciplinary, Healthcare Delivery Model for Tattoo Removal
Emily O’Mara: Medicine and Public Health
Alex Miles – Medicine and Public Health
Faculty mentor: Richard Hobbs
Community partner: Jo Martin, Tattoo Removal Ink
Square One is a free, mobile tattoo removal service for those currently and formerly incarcerated and gang-involved. Through this service, we support individuals’ efforts to reintegrate as productive members of their communities. We are purchasing a laser and a van fit with the necessary equipment to provide mobile treatment at partner clinical sites. Our service will be provided by medical students, residents, and attending physicians who have completed the requisite tattoo removal training. To meet ongoing patient care needs, a nonprofit, charitable fund will be created through the UNC Medical Foundation. As tattoo removal is typically non-revenue-generating, fundraising led by the medical student groups will offset the cost of these individual procedures and expand the volume of patients treated.
Music and History-telling at the Global Scholars Academy
Sarah Tomlinson: Music
Faculty mentor: Cherie Rivers Ndaliko
Community partner: Jason Jowers, Global Scholars Academy
This project proposes new strategies for introducing young people to music in ways that recognize the importance of all cultures, including their own. In most music education classrooms for elementary school students, “music history” is limited to listening to a few pieces of classical music. This project attempts to introduce young people to music in more inclusive and culturally-empowering ways by sharing stories of race, class, and gender diversity in multiple genres of music, including classical music, which is often represented as elitist and exclusive. This collaboration with the Global Scholars Academy, a K-8 public charter school in Durham, will make two existing programs more robust and sustainable: the Music and Storytelling Program for K-2 students that pairs biographical picture books about musicians with music performance activities, and the Musical Detectives Program for 3-5 students where students evaluate music materials designed for young people from the past and present through vocal and instrumental performance and concert field trips. This fellowship also allows us to develop curricular resources that will be usable for teachers and music historians across various educational contexts.